Our goal is to improve information and services, and ultimately the health and quality of life of individuals and families affected by hereditary cancers. The more people who agree to participate, the more helpful this research will be in answering important questions patients face every day.
The network is interested in all aspects of health and healthcare decisions related to hereditary cancer including:
- dealing with inherited risk
- quality of information and genetic counseling
- genetic testing and understanding results
- screening and prevention
- diagnosis and treatment
- impact on health, quality of life and family
- information and resource gaps
This network is a collaboration between the national nonprofit organization FORCE (Facing Our Risk of Cancer Empowered) and researchers at the University of South Florida. Our partner organizations include the Black Women’s Health Imperative (BWHI), Ovarian Cancer National Alliance (OCNA), Sisters Network®, and Young Survival Coalition (YSC).
Participation includes providing your consent and filling out a survey about your experiences related to hereditary cancer risk. Then, as a participant, you can log into the ABOUT website at any time to get information about how many people are participating, ABOUT Network progress, links to hereditary breast and ovarian cancer updates, webinars, conferences, and other information and resources. For more information about this research please click here.
If you have any questions or concerns, please contact us via email at firstname.lastname@example.org or call us at 1-866-632-2873.