Welcome to the ABOUT Patient-Powered Research Network

Have you or your family members been affected by breast, ovarian, prostate, melanoma, pancreatic or other related cancers that are or may be due to an inherited reason? 

ABOUT is the first national effort to invite people from across the U.S. to share their experience with hereditary breast, ovarian, prostate, melanoma, pancreatic and related cancers. If you have either a personal or family history of any of these cancers, or any genetic mutation related to these cancers, please join us!


Join ABOUT

Participate in the ABOUT Network. Click “Join” to give your consent and fill out the survey online.

Returning Participants

If you have already registered for the ABOUT Network, please log in. 

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More ABOUT Us

Participation includes providing your consent and filling out a survey about your experiences related to hereditary cancer risk.

Then, as a participant, you can log into the ABOUT Network website at any time to view/download the data you have provided, update your contact information, and upload your genetic test results or other relevant medical records that you want to share.

For specific information about enrollment, such as information about eligibility, data sharing and data privacy, and enrollee expectations, please view our ABOUT Network FAQs. For more general information about this research network, including engagement opportunities, research processes and results, and who we are, please visit our main ABOUT Network Website.

This network is a collaboration between the national nonprofit organization FORCE (Facing Our Risk of Cancer Empowered) and researchers at the University of South Florida.

Our partner organizations include the Black Women's Health Imperative (BWHI), Ovarian Cancer Research Fund Alliance (OCRFA), Sharsheret, and Young Survival Coalition (YSC).

What does ABOUT want to accomplish?

Our goal is to improve information and services, and ultimately the health and quality of life of individuals and families affected by hereditary cancers. The more people who agree to participate, the more helpful this research will be in answering important questions patients face every day.
The network is interested in all aspects of health and healthcare decisions related to hereditary cancer including:

  • dealing with inherited risk
  • quality of information and genetic counseling
  • genetic testing and understanding results
  • screening and prevention
  • diagnosis and treatment
  • impact on health, quality of life and family
  • information and resource gaps

If you have any questions or concerns, please contact us via email at aboutnetwork@epi.usf.edu or call us at 1-866-632-2873.