Welcome to the ABOUT Patient-Powered Research Network

Have you or your family members been affected by breast, ovarian, prostate, melanoma, pancreatic or other related cancers that are or may be due to an inherited reason? 

ABOUT is the first national effort to invite people from across the U.S. to share their experience with hereditary breast, ovarian, prostate, melanoma, pancreatic and related cancers. If you have either a personal or family history of any of these cancers, or any genetic mutation related to these cancers, please join us!


Join ABOUT

Participate in the ABOUT Network. Click “Join” to give your consent and fill out the survey online.

Returning Participants

If you have already registered for the ABOUT Network and would like to finish a survey, update your information, withdraw from the network or obtain updates or more information, 


More ABOUT Us

Participation includes providing your consent and filling out a survey about your experiences related to hereditary cancer risk.

Then, as a participant, you can log into the ABOUT Netowrk website at any time to get information about how many people are participating, ABOUT Network progress, links to hereditary breast and ovarian cancer updates, webinars, conferences, and other information and resources.

For more information about this research network, including eligibility, engagement opportunities, research results, and frequently asked questions, please visit: ABOUT Network Overview webpage via the FORCE Website.

*Also, if you choose to enroll in the ABOUT Network, we will automatically include your name in a monthly $50 gift card drawing, and the earlier you enroll, the more chances you'll have to win!*

This network is a collaboration between the national nonprofit organization FORCE (Facing Our Risk of Cancer Empowered) and researchers at the University of South Florida.

Our partner organizations include the Black Women's Health Imperative (BWHI), Ovarian Cancer Research Fund Alliance (OCRFA), Sharsheret, and Young Survival Coalition (YSC).

Our goal is to improve information and services, and ultimately the health and quality of life of individuals and families affected by hereditary cancers. The more people who agree to participate, the more helpful this research will be in answering important questions patients face every day.
The network is interested in all aspects of health and healthcare decisions related to hereditary cancer including:

  • dealing with inherited risk
  • quality of information and genetic counseling
  • genetic testing and understanding results
  • screening and prevention
  • diagnosis and treatment
  • impact on health, quality of life and family
  • information and resource gaps

If you have any questions or concerns, please contact us via email at aboutnetwork@epi.usf.edu or call us at 1-866-632-2873.